Parkinson’s Awareness Month

As I noted in the previous post, April is Parkinson’s and Autism Awareness Month and I warned you that I will try to post more frequently this month.  Who knows, that might get me to post more frequently every month.

For those who are wondering about my interest in Autism, I have a grandson, Charlie, who was diagnosed as being on the Autism Spectrum when he was 3.  He is 14 now and will be going to high school next year. The work done by Autism Speaks and other organizations to increase Autism awareness and research were instrumental in his early diagnoses and subsequent treatment. The information that these organizations provide to caregivers and patients is invaluable. We have found the same to be true of the Parkinson’s organizations.

For those of you that supported the Parkinson’s Action Network (PAN) campaign to remove the Medicare therapy caps, I and PAN thank you for your support.  Unfortunately Congress ‘kicked the can’ down the road and passed an extension of the current law for another year, but we will keep trying!

For those of you wondering what went on this week, it wasn’t all fun!  I was originally scheduled for a colonoscopy the Monday after the Superbowl. I decided to reschedule it so the preparation and fasting would not interfere with me watching the Broncos win (well it was a good idea at the time). The rescheduled event was for this Monday so I went through the fasting and other prep on Sunday but when Monday morning rolled around, things were not as clean as they should be so….I did it the fasting and prep again on Monday so they could redo things Tuesday morning.  This time it worked and no problems were found which was good news.  Also because having Parkinson’s makes you more likely to have melanoma, I had the first of my now annual visits with the Dermatologist, again all was well.

On the positive side, we had several nice days resulting in evenings on the screen porch enjoying the lake, the sunset and music.  Now that things are warming up, I’m ready for the lake level to rise so I can do some fishing and boating.

Tomorrow is the local Parkinson’s Unity Walk and we are hoping for nice weather.  We appreciate the support we have received, thank you.  I’ll let you know how it all goes in the next post.

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