Year: 2014

The PD Southern Symposium and Victory Summit

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The PD Southern Symposium and Victory Summit We had a wonderful time in Spartanburg SC at the Parkinson’s Disease Southern Symposium.  I have tried to summarize what went on during this three day event below.   Thanks go out to Lisa Cox, Linda Morgan, Ken Cater and Bill Wilkins, the team that conceived and planned a very successful event. The first day consisted of opening ceremonies followed by exhibits and lunch at the Spartanburg County Library, a dance class at Ballet Spartanburg Studios and a screening of the documentary Capturing Grace by Dave Iverson.   On our walk over to the library…

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Clinical Trial Needs, Southern Symposium and NOLA!

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I have previously posted about the need for clinical trial participants.  I have joined Fox rial Finder which has a large database of trials and provides a list of possible research opportunities based on your desired parameters (distance from home, # of years with PD, etc.).  Mara and I recently matched up for a trial being conducted at the University of Alabama Sparks Center, Mara as a control and I as a PD patient.  The trail is called LRRK2 and Other Novel Exosome Proteins in Parkinson’s Disease (that’s a mouthful!)  LRRK2 is one of the genetic markers closely associated with…

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